Monday, September 8, 2008

Our trip to Children's Hospital

Ethan had an appointment this morning with the occupational therapist at Children's Hospital.  I got teary within seconds of driving onto the campus, as it was a nice day and some of the patients were out for walks with their nurses or parents.  I cannot even remotely imagine what it must be like to have a child with an actual health problem.  The strength of parents with sick kids is amazing. 

We were a little early for our appointment, so sat in the waiting room watching the fishes in the fish tank, which Ethan enjoyed.  The appointment went well, and the occupational therapist was able to pinpoint the problem fairly quickly- Ethan has a problem with oral hypersensitivity, and doesn't like the feel of things in his mouth. She asked how he was doing with having his teeth brushed, and I told her that it's a gigantic wrestling match, as he fights having anything like that put in his mouth with all his strength. I'm not even 100% sure how many teeth he has these days, since he gets very upset when I try to feel his gums.  This is apparently very typical with oral hypersensitivity.

So, we have to try to massage the sides of his mouth with a special little brush and slowly introduce texture into foods that he already likes.  And continue getting him to eat by whatever means necessary, so that he doesn't lose any more weight.  He has a weight check next week, so we'll see how he's doing on that front then.

Now he's off at daycare while I try to catch up on work and not get too distracted by the laundry that needs to be folded or the dishwasher that needs to be unloaded.  I like working from home, but it can be hard to focus sometimes! 

1 comment:

BJ said...

We've had one lose weight too, and it's no fun. She got tested for all kinds of things, including parasites, celiac's disease and cystic fibrosis. Scary! But she recovered and is a fiery three year old now. Be encouraged!